EU Joint Action(s): under RD-Action (2015-18)
Whilst working for EURORDIS, I supported the implementation of the European Union Committee of Experts on Rare Diseases (EUCERD) recommendations for the ERNs; specifically the EUCERD Addendum to develop patient involvement (>300) in the ERN system; and, under JARDIN (2024-27) supporting the integration of ERNs into national health systems and the European cross-border healthcare system, specifically as a methodology expert on pathway development and supporting the development of ERN care pathways.
JARDIN: www.jardin-ern.eu
RD-ACTION: www.rd-action.eu